Wednesday, February 4, 2009

Me and my Vitiligo

Me and my Vitiligo

24 comments:

  1. Hi Kelly, My name is Jamie and im from the UK. Lincolnshire to be precice. Im 18 and ive had vitiligo since around the age of 9. It first appeared on both my ankles and but i didnt think much of it at first, then on both my knees, hips and elbows. Throughout my teenage life its remained pretty much stagnant until recently when i noticed a small patch at the side of my mouth and im very afraid more will soon start to appear. I tried anti-vitiligo oil when i was about 15. It irritated my skin and smelt bad but i did start to see very small patches of repigmentation on both my hips and one elbow after about 2 months of use. Next i tried vitiligo-tab, its a pill you take twice a day and i did for about three months but saw no improvement. More recently ive been looking a studies at king's cross college in London that say peperine (the active ingredient in pepper) stimulates repigmentation. Also there have studies that show links between folic acid, vitamin b12, vitamin b5 deficiencies in the bodys of vitiligo sufferers. Another thing you might want to look at is an online book written by a man whos daughter had vitiligo and cured it. I havnt read it but i will be doing so soon. go to google and type in 'Emily's Vitiligo' i think its the one above geocities. Furthermore ive seen your youtube video and think your not only very brave but extremely beautiful. I look forward to hearing back from you (my email is Jamie_951@hotmail.com). Thank you xxx

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    1. hi, this is Jenny from China, i saw ur story and want to help u to cure vitiligo. the traditional Chinese medicine is very useful. if u want to know more we can talk by skype:yuandu2013 or email: jenny.yan.wong@gmail.com

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  2. i have vitiligo on the entire right side of my stomach. i have had it since birth and as i have grown it grows with me. in childhood i was ashamed but as i grew older i learned to embrace it. my question is are tatoos safe on that area i have done research and son say that it links to cancer/melenoma ect. did you talk to a dermatoligist before you got your tatoo?

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    1. tatoos on vitiligo area may link to bigger area's vitiligo in theory.

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  3. No I did not talk to a dermatologist before the tattoo, I just hope and pray everything will be fine.

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  4. Hi, doing a presentation on vitiligo for school and came across your page. Sweet Tat!!!...Best of luck to you.

    Lysha

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  5. Im 27 and just got diagnosed with vit last year after coming back the tropics. I love to fish and surf and be out in the sun, so u can imagine what its going to be like now living in San Diego. It is a complete lifestyle change, but im just glad to still be alive and not have a worse autoimmune disease. Good luck and thank you for posting on youtube.
    This website has been my bible since, check it out.
    http://www.vitiligosupport.org/

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    1. Hello, I am a 23 year old girl with vitiligo. I got diagnosed two years ago while I was in a tropical country. It called my attention that you mentioned you got after you were in the tropics. Where exactly did you go?

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    2. Hey, i can introduce u an special hospital,curing vitligo with traditional chinese medicine, named huahai vitiligo hospital. hope it can help u.

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    3. Hi jenny
      Can u tell me what the hospital is offering for treatment

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    4. U can email me at mzikhan@live.co.uk

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  6. Hey , im 15 years old and ive had this diesease since i was about 9 years old. its all over my face and its terrible however i began using vitamin supplements that target specifically what vitiligo patients lack. it is called Recouleur. i have been using it for 6 months and i have seen a significant improvement hopefuly within another 6 months it will be completely gone. TRY IT OUT !

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  7. Hi, im 37 years old and have vitiligo since 11 years and live in Mauritius. When i start having it the doctor at that time didn't know the name of the disease. But i made a search on the net about 5 years ago and find out the name of the disease call Vitiligo. At that time there were no treatment available but last year i visited National Vitiligo Foundation and found about vitamin supplement since then i been using Vitamin B12 , Folic Acid & Vitamin C. As the site suggest that pantothenic acid also good but not avaliable in my country. I have been taking these vitamin 2 capsule per day since October 2008 and now in Setember 2009 i must say i had some improvement, some had disappread but some still the same. Now in my county they are selling Recouleur which i know also good as some people are getting cure with it. I am now using a product from www.merryclinic.com is call vitilax , i have been using the product since Feb 2009 u have to take 6 capsule twice daily but up to now no improvements but i order the vitiligo oil from the same side , as it suggest to use it with the sun exposure, after doing 2 session in the sun for 30 minutes i have started getting pigmentation on some of my patches.
    I would recomend you to try the oil from merryclinic and the Recouleur capsule. Well i must say you are very brave to post your story on the net. As for me i dont live my home without cosmetic makeup on my fingers.
    One thing , don't give up , keep fighting as these treatment may not work for you in 6 months time but might work in 9 or 10 months time, i have seen people with vitiligo getting cure with Homeopaty which unfortunately did not work for me!!!

    I have decrease my social life beause of this desease.

    Good luck and keep fighting , and thanks it been a great moral help for me to see people like you to come with your story online without any fear.

    May god help us all !!!

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    1. Hi Prakash,
      I am in Mauritius as well and would like to have a chat with you about where I can get these vitamins and products. Please can you contact me asap on krapunzel@yahoo.co.uk
      thanks,
      k

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  8. Hey Kelly. My name is Tatiana and I have had vitiligo since i was about 7 years old. I had it on my eye lids, my legs, my face and hands. I am 20 now and I only have it on my ankle on my left foot and the back of my right leg VERY VERY similar almost exact to your left leg and also my whole right foot. I have tried everything I have come across. For about 3 years now I have been wanting to tattoo over my vitiligo. I have done some research about it and I want a personal opinion from somebody who has actually done it. Please get back at me, I would very much appreciate it. My name is Tatiana Salazar on vitiligo friends or if not you can send me an email at Tatiana.724@hotmail.com

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  9. Have had enough with Vitiligo? Don't Give up your hope too soon. Our medically proven Vitiligo Treatment will make you live your life all over again. It's easy, It's safe and It's quick... Have the best Vitiligo Cure at: curevitiligooil.com

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  10. This comment has been removed by the author.

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  11. Hi i started a blog too! www.inspirationvitiligo.blogspot.com :)

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  12. Michael Jackson's son has vitiligo. do you know??? see photo http://www.eurweb.com/2010/07/michael-jacksons-eldest-son-has-dads-vitiligo/

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  13. Hi,
    I have a 8 year old that has small vitiligo patches on his finger, elbows,
    ankles and now on the wrist. It has started about a year ago.
    I was given a few steroid creams from the dermatologist. I have seen
    no improvement other than the patches turn reddish.
    I understand that vitiligo is not the end of the world. My father-in-law
    actually has had it since he was young. Nevertheless, my worries
    are because he is young, what could happen to his self-esteem?
    I started reading on the merry clinic website, can anyone
    out there direct me whether its a good product? What about (Rocouleur)
    What about starting on some type of vitamin program?

    I'm scared for him, and don't know how to even start and help me.
    He tells me that kids ask him all the time (what's that?) He tells
    me "mom its no big deal, just spots from me falling all the time"
    LOL!

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  14. I have vitiligo since last 13 yrs, tried many medicines. It slowed down the spreading, but my existing spots are still there like in hands back, feet, lips. I used a medicine named "lukoskin." this medicine claims to cure within 300-400 days of treatment, but there are a lot of dietary restrictions, but when we want to get rid of this terrible thing, diet should not be a constraint. This didnt work for me. A friend that i found in a vitiligo forum told me about a natural treatment that worked for him. So, i started that treatment and guess what? I cured in 2 and 1/2 month. The best of this treatment is that is 100% natural. Check it in here: www.naturalvitiligotreatmentsystems.com

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  15. This skin condition is to a great degree shocking on the grounds that it makes us get to be “freaks ". That is the motivation behind why today I am going to share powerful Vitiligo Natural Treatment that you ought not to disregard on the off chance that you need to dispose of vitiligo inside a brief timeframe.

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  16. Goosefoot is a sort of vegetable, belongs to genus chenopodium, which grows in numerous parts in the world. They are rank-smelling, weedy plants. This plant also contains a number of clusters of flowers and rich in vitamins, protein, minerals, and folic acid and you can take benefit of this ingredient for Vitiligo Natural Treatment without any side effects.

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  17. Get the perfect solution of your white patch problem with vitiligo treatment in India only at Dr. Mohan Skin Centre.

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