Saturday, April 24, 2010
Hey everybody, sorry if I do not get back to everyone personally but I appreciate the feedback soo much, and also the comments. It means a lot to me that there are so many more people out there with vitiligo,, to know that we are all going through the same thing,, and that we are the only ones that knows what if feels like to really be different. It's been a year since I got the tattoos and it still looks great. I just added a few more to my foot and ankle areas, I will get those pics up soon. I know that I dont have vitiligo on my face or arms, but I still know how it feels to be looked at crazy and talked about. For those out there that have it more severe please just try to stay positive. I think there is a reason why we were chosen to have this disease, I think we all need to play a part in getting awarness out about vitiligo and help others with it. Much love to my Vitiligans!
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Hello Kelly, I was touched by your video on you tube and just had to visit your site. Since then I have created my own and hope to connect with others. I am 43 y/o and have dealt with lots of ridicule and name calling as a younggie but now I am mature and just live life as I am. God Loves me and gives me courage and strength to live on. Well keep smiling and hope to chat with you soon. Much Respect to all Vitiligans.
ReplyDeleteAww thanks Panthina,I will have to watch your video,,I just saw a saying that said "What God gives to you,he will help you get through it", I love that,I appreciate the comment and I appreciate you ;-)
ReplyDeleteHi Kelly I also was touched by your video on you tube. I have been recently diagnosed with vitiligo and it is stressing me out. When DR.'s say there is no cure or no known cause I find it hard to believe! I do agree with you when you said I believe we were chosen to get this disease for a reason. I want to fight it and be a good example to others. I want to walk with confidence even if it does go to my face. As of now it is on both hands and one foot a small spot. I count them everyday and they are growing. I want to know HOW this happens.
ReplyDeleteHi. my name is ana. I'm 12 years old. I first got vitiligo around my eyes when I was 5 years old. In october i will be 13 and its really hard to live with vitiligo. I have it around my eyes, on my forehead, on my neck, back, chest, knees, and elbows. On both sides of my body. I'm doing a treatment in the Academic Alliance in Dermatology. they put a small cylinder like tube against my skin and they turn on a laser. the laser is supposed to wake up the skin cells and get them to start working correctly again. I've had success on my forehead and my chest and my back. my neck is getting there. my knees and elbows are being very stubborn though. i live in florida so its hard to live in pants all the time so i hope this treatment works. i go to the treatment twice a week. sometimes it leaves ur skin sunburnt and it hurts but thats the price i have to pay. u guys are really helping me with my vitiligo.
ReplyDeleteMy name is Lily, I'm 17 from the Uk and I got diagnosed with vitiligo today. It began at the back of my neck and has now spread across my back and gradually to mr front. I haven't stopped crying this has crushed my confidence. I don't know how to deal with it, I'm just so upset
ReplyDeleteHi Kelly and all Vitiligans!
ReplyDeleteMy name is Juan I am 36 and live in Los Angeles, CA. I have had vitiligo since I was 4 years old on my hands, knees, and ankles the spots throughout my life have increased and decreased in size, the spots on my elbows went away on their own. I recently have new spots appearing around my mouth and forearms and this has prompted me to seek out what new treatments are out there. I found www.microskincenter.com and would like your or anyones opinion about this product. So far it appears to be the best option out now. The company is from Austrialia and they have just opened an office in New York City. I will do more research and if its the real deal I will fly to NYC.
Kelly in your video you talked about a doctor that was referred to you here in Los Angeles, would you be able to pass me that information so that I can consult with them and find out if they are a viable option. You or anyone may contact me at riosjuanrios2gmail.com
A positive attitude and strong self esteem are prerequisites when one has vitiligo. Be strong and enjoy life, we are on earth for a short time and must enjoy every minute!
I look forward to hearing from you and congrats on the tattoos, they look great.
Anyone else who has questions or feels like venting feel free to contact me.
hi kelly
ReplyDeletei've had vitiligo since i was 12, it started as some small spots on both of my knees and fortunately have not spread. I do also have a few small spots on my face, on my back and on my elbows... i do know how it feels to be target of jokes but i always try not to be stressed about it since it's worse for our condition. Now i am almost eighteen and im worried about the spots on my face spreading, what do you think about the treatment with uvb rays? have you ever taken it?
thanks for reading my comment and for shearing your story with us, cheers up!
You are a very beautiful young woman and no one can make you believe that isn´t true... 'cause it isn't.
PS: nice tattoos!
sorry for my bad english i'm a southamerican
ReplyDelete"You are a very beautiful young woman and no one can make you believe that isn´t true... 'cause it is"
now sounds better
hi, who ever read this please check me out on facebook. do a search for 9yrsofvitiligo
ReplyDeletei am recovering from it but slowly. my only worry is that i may not get a girl friend or wife. but i am happy. i love myself.
I USE MICROSKIN IF ANYONE WANTS TO KNOW MORE...
ReplyDeleteHi Kelly -
I too have vitiligo - quite severely. I am one of the first few people in the US to have started using MicroSkin - a custom matched vitiligo cover which wears for several days until you remove it. MicroSkin was started in Australia, and only just started selling in the US recently. The only place to get it is in NYC.
I really love it, although it is not a permanent fix. It is applied with an airbrush, and as I said before, custom matched to your skin color. It is the best thing that has happened to me in a long time. I am now able to wear dresses which show my back, swim, and even teach yoga barefoot without people staring at my vitiligo. The hardest part is being careful to keep my skin protected with sunscreen in the summer so it stays approximately the same shade.(MicroSkin recommends having a summer and a winter shade, but I only have one.) If you have any questions you'd like to ask, you can contact me at yarena@bellsouth.net. Good luck, the tatoos look great!
hey this is manish from India...i too have ventiligo ..it sbeen for 20 years..I guess I live with it and it doesnot matter to me anymore..There is a Dr whose treatment I am taking..Its homeopaty treatment..I gues English medicine has side effects too...i tried Allopathy ie english medicine..it did work for me..Trust me ..u dont have much ..and it could be cured..depending on ur life style..Mine it has recovered..Be optimistic and trust in god...U r beautiful...and the tatto are gud too..U cn contact me at man1234512345@gmail.com
ReplyDeleteHello Kelly, I also have vitiligo since 2003.
ReplyDeleteI've tried different treatments. Now I have 15 days that I've started a new treatment that will re-pigment my skin in around 6 months. I'm paying around $200 per treatment each month. Email me and I can give you more info. gus.quino@gmail.com
Hi Kelly, my name is Mariana and I live in Montreal, Canada. I was diagnosed with vitiligo 3 days ago. It started on my left underarm and the back of my neck, it has spread very quickly in the past two months when I first noticed it. I went to see a dermatologist and she put me on ELOCON 0.1 for 3 months and told me to go back for a follow up appointment... I know I do not have it in any visible spots YET...(I hope I will never do) and that fortunately, we won't die from this, but it has been really hard for me and my self esteem since I work as an esthetician.... Does anybody knows any good dermatologist in Canada????
ReplyDeleteThanks! I wish you all the best with your treatment.
Mariana
Hi Kelly,
ReplyDeleteI was told yesterday that i had vitiligo.
I'm 18 years old and have been already living with the "Condition" for a couple years now.
I have it on my torso, upper arms and legs.
It can really suck at times and i'm trying to get through it.
I know it's not life threatening but i just want people to understand how i feel.
I get down when people (My mother) say i should just cover it up when it gets bad.
I hate it at times.
I have three elder sisters, none of them have it.
My aunt and uncle suffer from it, my father didn't get any signs.
I'm just trying to look on the bright side...
Thank you for posting this article.
Hi kelly im jojo frm philipines i hve a vitiligo in my hle bady bt i have a cure hr in philipines ah natural frote hire.
ReplyDeletecontact me in my mobile phone 09108473389 i help u you help me?
ReplyDeleteI have vitiligo also but it is all over my body. 99 percent of it. Recently I have been having vision problems and is wondering if Vitiligo has anything to do with it? I know there is pigmentation on a persons pupil which people who are albino their eyes are red because of loss of pigmentation in their pupil and i'm 20 years old and am wondering if that is happening to me?
ReplyDeletehi Kelly, I am rachael and I am 13 going on 14 in a couple of months. this has been hard for me. like I havent went to the pool since I had this and it is embarrassing to show it because people ask me questions and look at me weird..I hate wearing shorts, i think of it like this we could have things worst. i have vitiligo on my back, armpits, face(only a little), legs, hips,chest and little spots all over the place. i hate looking at myself in the mirror and I hope I can get some pigment back with a treatment.. I am using one now but it isnt working :(
ReplyDeleteVitiligo is a long lasting disease which causes skin lightening in the form of patches. It takes place when melanin producing cells die or are unable to operate. It occurs due to the loss of pigment and affects one in every two hundred people. The people, who are affected by vitiligo develop white patches on their skin. It affects the people of all races and ages equally.
ReplyDeleteBut now it is not a big problem with Ayurhealthline. Ayurhealthline herbal clinic for Research based Herbal Ayurvedic medicines Anti Vitiligo Kit for Vitiligo cure, Leucoderma cure White Patches treatment with no side effects.
Hi Kelly,
ReplyDeleteI'm Val and I also have vitiligo. I was thinking of having a tattoo on a healthy part of my body, but I'm afraid that a new patch will be created if I do so! What do u think?
Ps I luv your blog !
Over 100 million of people suffer from this skin disease daily, but there is no cure in sight. With focus on collaboration efforts, we can bring that number closer to zero.
ReplyDeleteTake action today and urge the UN Secretary-General to prioritize multilateral efforts in healthcare and education for this neglected disease. This year we aim to raise 500,000 signatures to address the United Nations in order to:
-Designate June 25 as the World Vitiligo Day to be observed by the United Nations and Member States every year. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing: http://www.25june.org/.